We Imagine a World
We Imagine a World
WITHOUT
Huntington's disease
The mission of the Huntington's Disease Foundation (HDFI) is to serve as the trusted resource for the Huntington's disease (HD) community by raising awareness, providing disease education, and funding research.
HD EVENTS
From golf tournaments to Conferences -- See what's happening in an HD community near you.
LET THE WORLD KNOW
Host an event, engage legislators, or become a HD Army Amassador to help in bringing awareness to HD.
HONOR A LOVED ONE
Create an online tribute page to honor the memory of a loved one or show your support for a friend.
SHOP AT HDFI STORE
Visit our online store to support those affected by HD. Each donaton and item purchase goes towards the HD cause.
Featured Video
Trey Gray talks about his battle with Huntington's disease.
Do you have a story about Huntington's disease that you want to share? Submit your story to have it on our "HD Warriors with a Face, Voice and a Story.." section. Your story could get selected for our "Feature Story".
HDFI's Mailing List
Upcoming Event
2nd Annaul Concert of Hope
June 24, 2017
Artists Performing
Calhoun Street CS3 | Stumps Lawn Care
KeyBridge Medical Revenue | Neat, Neat, Neat Records
Hosted By Paul Briggs
$10.00 at the Gate.
Address: 1915 S. Calhoun Street, Fort Wayne, IN 46802
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STEP UP: Become an HD ARMY AMBASSADOR
Are you interested in helping Huntington's Disease Foundation? Perhaps you are a donor, volunteer, patient or caregiver and you have always wanted to do more to help the HD cause. I encourage you to join the HD Army as an ambassador for Huntington's Disease Foundation. Here are some things you can do to be an ambassador for our nonprofit organization:
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Wear the Brand. Wear the name or logo. You never know who you will run into and the conversations that may be sparked by them seeing you wear Huntington's Disease Foundaton name or logo.
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Host an Event. Planning a charity event can be a fulfilling project for anybody interested in giving back to the HD community and raising money that will go to a good cause.
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Share. Go beyond liking the Huntington’s Disease Foundation's facebook page and share posts from the Huntington's Disease Foundation facebook page. Sharing a facebook post from our page will enable your friends to learn about our Foundation and HD.
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Tell your family. At the dinner table or family gatherings, tell your family about your involvement with the organization.
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Raise Money. Don’t shy away from the opportunity to help raise money for our organization to fulfill its mission. Keep your eyes and ears open for new fundraising opportunities for the Huntington's Disease Foundation and support the organization’s efforts to raise money.
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Attend Fundraiser & Educational events. Attending an event is a great way to learn more about the Huntington's Disease Foundation's programs and services, to educate yourself and others about Huntington's disease (HD), and to connect with other HD advocates.
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Advocate. Share public policy messages with elected officials about issues that impact Huntington's disease.
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Volunteer. Get involved and actively participate in volunteer opportunities with Huntington's Disease Foundation.
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Tell a coworker. Next time you are hanging out at the water cooler, talk with some of your coworkers about your recent involvement and interactions with the Huntington's Disease Foundaton. Perhaps they never knew of your involvement and were always interested in learning more about HD.
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Register as an HD Army Ambassador. Become an Ambassador to organize fundraising activities, be a representive for the charity in your local area, bring awareness to Huntington's disease and help engage people with the work of the Foundation.
Your support as an ambassador helps Huntington's Disease Foundation maximize their reach and increase awareness. By being an ambassador, you may open new doors for our organization to attract program participants, raise funds, raise awareness and recruit volunteers. Together, we can make a concentrated difference in spreading disease awareness, providing enhanced patient support, increasing essential research funding, and ultimately finding a cure!
STEP UP and make yourself an HD Army Ambassador for Huntington's Disease Foundation! We need your support!
HD FACTS
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Huntington's disease is, to date, incurable.
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Huntington's disease attacks nerve cells gradually over time.
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The condition effects around 1 in 10,000 Americans.
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The first signs normally present between the ages of 35 and 55.
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Early symptoms may include mood swings, clumsiness and peculiar behavior.
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During the later stages of the disease, choking becomes a major concern.
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Huntington's disease is inherited dominantly, and genetic testing has been possible since 1993.
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The disease is caused by a faulty gene that makes an oversized version of the protein huntingtin.
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Huntingtin interacts with a protein called Rhes in the areas of the brain involved in motor control.
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Current medications only attack the symptoms rather than the underlying issues in Huntington's disease.
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Can't be cured, but treatment may help.
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Requires a medical diagnosis
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Lab tests or imaging always required
