Huntington's Disease Foundation (HDFI)
The Huntington's Disease Foundation was founded in 2015 by co-founders Trey Gray, Doug Michael and Anett Pappas. The Foundation is recognized and registered in Texas as a 501 (c) (3) non-profit charity.
Trey Gray is a professional drummer. He has played for Brooks ‘n Dunn, Ronnie Dunn, Reba McEntire, Faith Hill and Jewel, just to name a few. In 2003, he was diagnosed with Huntington’s disease and his 3 children have a 50/50 chance of inheriting this disease too. His family members (mother and uncle) have both died of Huntington’s disease and he witnessed the pain and struggle as they went through each dreadful phase of HD. No person should have to go through that experience, which drove Trey into finding positive ways into turning his disease into something positive and inspirational.
In late 2014 Doug Michael, long time childhood friend of Trey's, and Anett joined Trey's dream and mission of helping Trey make a difference by positively benefiting HD research, education, and local support services, provide support in achieving Trey's dream. Huntington's Disease Foundation was created to keep Trey's dream alive and find a way to turn his disease into something positive. With creating this Foundation we aim to stay focused with the vision and be able to reach more people at a more personal, heart felt level. We are dedicated to continuing to bring awareness to the forefront and continue to hope, encourage and support – no matter how big or small – to help advance the pursuit of a HD cure.
Huntington’s Disease Foundation Mission Statement:
“Dedicated to eliminating Huntington’s disease through advancement of research and funding the cure; raising HD awareness; enriching care and support for all affected while improving quality of life.”
Huntington’s Disease Foundation Vision Statement:
Huntington’s Disease Foundation’s vision is to 1) Fund, promote, and support research laboratories and medical research in the efforts that are working towards developing a cure for Huntington’s Disease; 2) Create signature programs that will assist and council individuals, families and those whom are affected with Huntington’s disease providing them mechanisms to assist in coping with everyday problems the disease presents; and 3) To bring awareness and education to the overall public, including all public services and health industries about Huntington’s disease.