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We Imagine a World 

 

We Imagine a World 

WITHOUT

Huntington's disease

The mission of the Huntington's Disease Foundation (HDFI) is to serve as the trusted resource for the Huntington's disease (HD) community by raising awareness, providing disease education, and funding research.

HD EVENTS
 

From golf tournaments to Conferences -- See what's happening in an HD community near you.

 

 
LET THE WORLD KNOW
 

Host an event, engage legislators, or become a HD Army Amassador to help in bringing awareness to HD.

HONOR A LOVED ONE
 

Create an online tribute page to honor the memory of a loved one or show your support for a friend.

SHOP AT HDFI STORE
 

Visit our online store to support those affected by HD. Each donaton and item purchase goes towards the HD cause.

Clinical Trials

Coming Soon!

Featured Video

Trey Gray talks about his battle with Huntington's disease.

Do you have a story about Huntington's disease that you want to share? Submit your story to have it  on our "HD Warriors with a Face, Voice and a Story.." section. Your story could get selected for our "Feature Story". 

HDFI's Mailing List

HD FACTS

  • Huntington's disease is, to date, incurable.

 

  • Huntington's disease attacks nerve cells gradually over time.

 

  • The condition effects around 1 in 10,000 Americans.

 

  • The first signs normally present between the ages of 35 and 55.

 

  • Early symptoms may include mood swings, clumsiness and peculiar behavior.

 

  • During the later stages of the disease, choking becomes a major concern.

 

  • Huntington's disease is inherited dominantly, and genetic testing has been possible since 1993.

 

  • The disease is caused by a faulty gene that makes an oversized version of the protein huntingtin.

 

  • Huntingtin interacts with a protein called Rhes in the areas of the brain involved in motor control.

 

  • Current medications only attack the symptoms rather than the underlying issues in Huntington's disease.

 

  • Can't be cured, but treatment may help.

 

  • Requires a medical diagnosis

 

  • Lab tests or imaging always required 

 

A new device to the US that has been getting great results. You must check it out!  If you have questions please send questions to LifeUNV

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